Biobanks are repositories of sample and data that provide invaluable resources to both researchers and clinicians from a wide range of fields, including RDs. Access to biological materials and associated analytical and medical data is a prerequisite and a bottleneck for scientific research, particularly in RDs. RD biobanks play a pivotal role by maximizing access to precious samples between researchers in the international scientific community. Therefore, they are crucial for transnational efforts that aim to tackle a major health problem. Effective sharing and reusability of such unique samples require adherence to high-quality standards, harmonized standard operational procedures (SOPs) and searchable sample catalogs. This workshop will address these key aspects of RD biobanking. The topics will include principles of RD biobanking, how to establish a biobank for RDs, ethical concepts, quality management system, data and database management and security. Following the presentations by experts in the first day of the workshop, a problem-based tutorial section that will be focused on the challenges in RD biobanking and a hands-on training will be provided to participants on the second day.
This workshop is co-funded by a European Commission H2020 project, ADOPT BBMRI-ERIC under grant nr 676550. RD are a major item on the agenda for BBMRI-ERIC and collaboration beyond Europe is a must!
Local Organization Committee
Nur Arslan, MD, PhD
Neşe Atabey, PhD
Özlem Dalan, PhD
Cumhur Doğan
Soner Gündemir, MFin, PhD
Yavuz Oktay, PhD
Sanem Tercan Avcı, PhD
Merve Udeh
Görsev Yener, MD
08:00 - 09:00 | Registration |
09:00 - 09:15 | Welcome and Introduction (Mehmet Öztürk) |
09:15 - 09:30 | Goals of the Workshop (Neşe Atabey) |
09:30 - 10:15 | Principles of Biobanking in Human Biospecimens |
Markus Pasterk | |
10:15 - 10:45 | Coffee Break |
10:45 - 11:15 | Ethical Concepts for Biobanking |
Mats Hansson | |
11:15 - 11:45 | QMS for Biobanking |
Andrea M. Wutte | |
11:45 - 12:15 | Data and Database Management and Security for Biobanks |
Heimo Müller | |
12:15 - 13:30 | LUNCH BREAK |
13:30 - 15:30 | PANEL: Establishment of a Modern Biobank (SESSION 1) |
MODERATOR: Uğur Özbek Rania Labib - Egypt Imane Cherkaoui - Morocco Maher Sughayer - Jordan Ada Al-Qunaibet - Saudi Arabia |
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15:30 - 16:00 | Coffee Break |
16:00 - 17:30 | PANEL: Establishment of a Modern Biobank (SESSION 2) |
MODERATOR: Uğur Özbek Sibel Aylin Uğur İşeri - Turkey Said Ismail - Qatar Yosr Hamdi - Tunisia |
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19:30 | Dinner |
Thursday, May 3
09:00 - 09:30 | Introduction and Group Formation |
09:30 - 12:00 | Problem Based Learning (PBL) Sessions on Most Frequent Problems in Biobanks |
Tutors:
Uğur Özbek Neşe Atabey Sibel Uğur İşeri Yücel Erbilgin Yavuz Oktay |
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12:00 - 12:30 | Group Discussions |
12:30 - 13:30 | LUNCH BREAK |
Real Workflow in a Biobank | |
13:30 – 14:15 | Taking Informed Consent for Biobanks: Case Studies |
Görsev Yener, Nur Arslan | |
14:15 – 14:45 | Importance of Deep Phenotyping for Biobanking: A Case Study |
Neşe Direk | |
14:45 – 15:15 | Sample Transport, Registration and Sample Processing |
Yavuz Oktay | |
15:15 - 15:35 | Coffee Break |
15:35 – 16:05 | Generation of Patient-Specific Induced Pluripotent Stem Cell Lines for Rare Genetic Diseases: Biobanking Perspective |
Tamer Önder | |
16:05 – 16:35 | Tissue Biobanking |
Ayça Erşen Danyeli | |
16:35 – 17:05 | A Living Biobank of Cancer Organoids and Patient Derived Xenograft (PDX) Models to Reduce High Attrition Rates in Drug Discovery |
Haluk Yüzügüllü | |
17:05 - 17:35 | QC and QM: Best Practices |
Sibel Uğur İşeri | |
17:35 - 18:05 | Access & Distribution of Biospecimens: Practical Issues |
Yücel Erbilgin | |
18:05 - 18:15 | Closing Remarks |
19:30 | Gala Dinner |
The poster can be downloaded here.
SELECTION CRITERIA:
Onsite registration is not available.
QUALIFIED PARTICIPANTS:
NAME | COUNTRY | NAME | COUNTRY | |
Amany MAHER | Egypt | Burcu KESİKLİ | TR | |
Gülhas SOLMAZ | TR | Hadeer GHONIM | Egypt | |
Hülya KIRAY ÇARÇABUK | TR | Jody BELL | South Africa | |
Kübra YILMAZ | TR | M. Bilge PINARBAŞI | TR | |
Dilara ÇAKMAK | TR | Doğukan KOÇ | TR | |
Mervat ELDEFTAR | Egypt | Ouedraogo ISMAILA | TR | |
Shadman TARIQ | Iraq | Şükrü TÜZMEN | Cyprus | |
Tuba ÖZBAY | TR | Adil ŞEYTANOĞLU | Cyprus | |
İmge KUNTER | Cyprus | Ehsan ULLAH | Cyprus | |
Ahmet CARHAN | TR | Joanna VELLA | Malta | |
Dina MOFED | Egypt | Faisal GULZAR | Pakistan | |
Aydan SARAÇ | TR | Ayşe KOÇAK | TR | |
Ayşe Sedef KÖSEER | TR | Bora TAŞTAN | TR | |
Mahdi SHEKARI | IRAN | Meltem COSTANZO | Dubai | |
Duygu UÇKAN ÇETİNKAYA | TR | Emre DAYANÇ | TR | |
Esra IŞIK | TR | Kubilay Doğan KILIÇ | TR | |
Nagehan ERSOY TUNALI | TR | Nazmiye ALTINTAŞ | TR | |
Sema AYGAR | TR | Sevinç AKÇAY | TR | |
Tuba SÜZEK | TR | Umur KELEŞ | TR | |
Xiaozhou HU | TR | Esra ESMERAY | TR |
WAITING LIST
NAME | COUNTRY | NAME | COUNTRY | |
Dehan ÇÖMEZ | TR | Gülsün BAĞCI | TR | |
Didem ÖKMEN | TR |
For visa information please visit www.mfa.gov.tr/default.en.mfa
Taxi
Taxi, in general is quite reasonable. So, if you, as a visitor not having budget limitations, it is an advisable means of transportation. You should of course remember to check that the "taximeter" showing how much you should pay is turned on. It starts calculates from 3.00 TL(Approximately 1 EUR) and adds 2,45 TL (0.75 EUR) per km.
The Adnan Menderes Airport is located 20km away from the conference venue (İBG). One of the simplest ways to reach the conference venue is to take a taxi and go to the Dokuz Eylul health campus. The average duration of travel is around 20 minutes.
Bus
Within the city of Izmir, the main public transport means is the red municipal buses. In these buses you can use money or you can use "Kent Kart" (City Card).
One of the cheapest ways to reach İBG is to take the 202 bus route that departs from the arrival level of the airport (the ground floor, bus station). At the "Fahrettin Altay Meydan" station, drop off from Route 202, across the street at "Uckuyular Pazaryeri" station get on one of the bus lines (5, 6, 7, 554, 950) or take a taxi (about 7-10TL). The nearest bus stop to the İBG is “Dokuz Eylul”. Average duration: 40mins. For detailed information about route and departure times please click here.
Metro
In the 11.6 km-long line of the İzmir metro there are a total of 10 stations, namely the Hatay/ Üçyol, Konak, Çankaya, Basmane, Hilal, Stadyum, Halkapınar, Sanayi, Bornova/ Bölge and the Bornova ones. In the Bornova/Halkapınar, Hatay/Üçyol connection stations there is a connection with a bus while in the Konak Station there is both a bus and a ferry connection.
Other
For airport transportation please click here.
For Metro transportation please click here.
For İzban transportation please click here.
For İzdeniz transportation please click here.
Tickets & Passes
İzmir has two travel cards, which cover bus, metro, İzban and ferry trips. These are available and can be recharged at stations, piers and shops with the Kent Kart sign. İzmirim Kart (City Card) You pay a 7 TL (2 EUR) deposit when you buy the card and then top it up with credit. When you use the card, 2.40 (0.7 EUR) is debited from it, then every journey you make for the next 90 minutes is free.
KAYA İzmir Thermal & Convention
Located in the Balcova region which is known as the historical Agamemnon thermal springs and renowned for its remedial thermal water since the ancient times, the 5 star Kaya Izmir Thermal & Convention Hotel is proud to be able to make its guests feel better by combining the medical care with plenty of oxygen and natural qualities at its physiotherapy and rehabilitation facilities which is recognized as the most modern thermal spa and treatment center in Turkey. Kaya Convention Center is the largest in Izmir with its 2,000 m² astylar style spacious hall built on 5,800 m² grounds.
For details please click here.
Price:
Single Deluxe Room: 65-Euro
Double Deluxe Room: 75-Euro
Ramada Encore
Price:
Business Room (Land, Sea View)
Single Room: 43 €
Double Room: 53 €
Wyndham Grand İzmir
As a member of Wyndham Hotels & Resorts chain, Wyndham Grand İzmir Özdilek offers privileges and advantages of distinguished location embracing sea & city to gueststravelling for business or leisure purposes and meeting delegates with five star hotel quality.
Hotel is close to recreation area with shopping malls, restaurants, cafés and military museum ship. Proximity to motorway for International Adnan Menderes Airport, Gaziemir Fair Complex, industrial zones including Aegean Free Zone, Ephesus and House of Virgin Mary makes the Hotel' s location excellent.
Scheduled free shuttle service to/from airport & different points in city,internet and free parking are available.
For details please click here.
Price:
STANDART ROOMS
Single Room 75 Euro
Double Room 90 Euro
CLUB ROOMS
Single Room 110 Euro
Double Room 130 Euro
SUIT
Junior Suit (Single) 200 Euro
Junior Suit (Double) 220 Euro
Senior Suit (Single) 270 Euro
Senior Suit (Double) 290 Euro
Presidential Suit (Single) 650 Euro
Presidential Suit (Double) 675 Euro